Our mission is to spread awareness and improve the lives of individuals and their families affected by all types of Timothy Syndrome and Long QT 8. We provide support to families through online support groups and family conferences that bring typically isolated individuals together. We are developing a website to promote awareness and provide education to our families and the medical community as well as attending medical conferences to make the medical community more aware of this extremely rare and life-threatening condition. Through our natural history study and registry we will be able to promote research into Timothy Syndrome with the hopes of building a better understanding of this condition and finding treatments for these medically fragile individuals. We are a tax exempt 501c3 organization.